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Welcome to the "NEW" Ataxia
Discussion & Research Forums!

For more information visit the OPCA Awareness Website i
This forum originally focused on OPCA, Olivopontocerebellar atrophy. This refers to a group of ataxias (listed at top of page) characterized by progressive neurological degeneration affecting the cerebellum, the pons and the inferior olives (all parts of the brain).
However, we welcome everyone with any type of Ataxia to this forum!


Friederich's Ataxia

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Friederich's Ataxia

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RSS bedbound

Privateer

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Privateer

Oct 31 11 6:25 AM

RSS Walking Like You Have Ataxia

sportschick12

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sportschick12

Mar 20 07 2:20 PM

RSS Cavernous Malformation

wpre1969

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wpre1969

Feb 28 07 10:40 AM

RSS Advice - Questions for Neurologist

BobM54

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sportschick12

Dec 7 06 11:55 AM

Hot Topic w/ No New Posts RSS Telling children? (1,2)

Bob354

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jenbob13

Nov 27 06 8:22 PM

RSS Doctor at Johns Hopkins in Maryland

BobM54

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BobM54

Nov 7 06 11:54 AM

RSS insurance question

NancyS

1 435 0

David

Sep 23 06 1:52 PM

RSS communication devices

youtakethegood

4 683 0

Allie

Aug 10 06 10:56 PM

RSS HMSN (aka, peripheral neuropathy)

color

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sportschick12

Oct 6 05 3:53 PM

RSS Oriental Medicine

Dory

11 4100 0

color

Sep 21 05 9:43 PM

RSS Scared to death-of falling

hedder72

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auntgoose2002

Aug 21 05 3:10 AM

RSS Power wheelchair question

njtpcs

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soulmates

Jul 4 05 7:35 PM

RSS Recliner

color

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color

Jun 29 05 1:20 PM

RSS QUESTION -What do you say when people ask what wrong with U?

lorydory

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Hoolie

Jun 27 05 4:42 AM

RSS paraneoplastic disorders: cerebellar ataxia, CAR-, neuropath

Unregistered(d)

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Unregistered(d)

Apr 26 03 2:03 AM

RSS Tell us what has worked for you

brosen4507

4 504 0

Unregistered(d)

Jan 26 03 5:33 PM

RSS Health Insurance?

Unregistered(d)

2 465 0

Unregistered(d)

Jan 25 03 1:19 PM

RSS Genetic Testing

Unregistered(d)

3 764 0

Unregistered(d)

Nov 10 02 2:38 AM

RSS Vestibulocerebellum Degeneration

Unregistered(d)

1 538 0

Pam

Nov 2 02 12:25 AM

RSS Must Read

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Unregistered(d)

Oct 11 02 6:20 PM

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Books of Interest
Buy Ed's Book Online. "The Dizzy Desease" - Anyone who experiences MSA/SCA/OPCA and their caregivers or family members should read this compelling account of life with "The Dizzy Disease".
Buy Rodney's Book Online. "Eyes Opened Wide" - It tells about his life living with Olivopontocerebellar Atrophy (OPCA) as well as the support he gets from this forum.
Buy Patricia's Book Online. "A Balancing Act" - This book is for everyone because it speaks to the human spirit, from not knowing what was causing her problems to her discovery of Spinocerebellar ataxia (aka OPCA).