Ataxia on a Daily Basis http://opca.yuku.com/forums/8 en-us Copyright 2006, Yuku feeds@yuku.com (FeedMaster) webmaster@yuku.com (WebMaster) Mon, 16 Nov 2009 14:13:29 GMT Yuku Feeds 1.0 http://blogs.law.harvard.edu/tech/rss 60 Yuku http://static.yuku.com//feed/bypass/images/button-yuku.png http://opca.yuku.com/forums/8 Yuku - free hosted forums and profiles 88 31 {pics-1.1 "http://www.icra.org/ratingsv02.html" l gen true for "http://yuku.com" r (nz 1 vz 1 lz 1 oz 1 cz 1 ) "http://www.rsac.org/ratingsv01.html" l gen true for "http://yuku.com" r (n 0 s 0 v 0 l 0 )) Search Search Domain q http://yuku.com/search/direct/ <![CDATA[ my head ]]> http://opca.yuku.com/topic/2506/t/my-head.html

my head hurts I going to the computer and I went ...saw the coffee table first (glass). He needs to switch it to the wood one.
maybe he wouldn't be so wanting or getting everything I do so I will feel afraid, told him off & I will do what I want.
So he is mad,what else?image

Heard him talking saying I have... ]]> feeds@yuku.com (iceteezz2008) http://opca.yuku.com/topic/2506 Mon, 16 Nov 2009 14:13:26 GMT <![CDATA[ time to tell my neurology doctor ]]> http://opca.yuku.com/topic/2490/t/time-to-tell-my-neurology-doctor.html my family doctor knows about the problem so all these tests but I mentioned Ataxia and was told no it isn't but my neurology doctor says I do
My neurology doctor was wanting me to talk and was but he said I had it again but I was surprised in a way
Now I still have to tell him but told my family
not use to all these problems & feelings and enough... ]]> feeds@yuku.com (iceteezz2008) http://opca.yuku.com/topic/2490 Fri, 24 Jul 2009 18:25:09 GMT <![CDATA[ is everyone ok? ]]> http://opca.yuku.com/topic/2475/t/is-everyone-ok-.html So how is everyone feeling today? Here in San Diego most people are terrified of the Swine flu virus. I know it's scary, esp. for those folks whose immune system is whacked out anyway. But we feel that if we take common sense precautions (wash hands often, etc.), that we should be all right. I'm most worried about my mom right now, she's 87 and just lost my dad. I couldn't stand it if something happened to her, too.
Sure hope more people... ]]> feeds@yuku.com (aunt goose) http://opca.yuku.com/topic/2475 Sun, 03 May 2009 13:42:27 GMT <![CDATA[ Ataxia and other ailments ]]> http://opca.yuku.com/topic/2466/t/Ataxia-and-other-ailments.html Hi Folks,

I know that most of us suffer with both common and rare symptoms of Ataxia. However, I know that some of us are afflicted with non-Ataxia ailments. Up to last December, I saw myself with only SCA6. However, in December, I was hit with pain in my shoulders, upper and lower arms and wrists that I found it very difficult to maneuver around the house. As I mentioned in an earlier post, my wife had to help my out of bed in the... ]]> feeds@yuku.com (Sailor George) http://opca.yuku.com/topic/2466 Thu, 09 Apr 2009 21:47:25 GMT <![CDATA[ kicked out. ]]> http://opca.yuku.com/topic/2465/t/kicked-out-.html me and a friend went out for a drink, we went to a local bar at around 8pm. there were two dooormen inside at the bar and as i walked paast them i seen them eyeing me. we went out to the beer garden so we could smoke witth our drinks and one of the doormen kept coming out and having a look at me. after an hour or so i had to go to... ]]> feeds@yuku.com (silkk801) http://opca.yuku.com/topic/2465 Mon, 06 Apr 2009 05:33:02 GMT <![CDATA[ Internal Tremors ]]> http://opca.yuku.com/topic/2462/t/Internal-Tremors.html I have this funny feeling this has been addressed multiple times:

However, since this is fairly new to me, I was curious as to how many folks experience internal tremors? They seem the worse at night & going into the morning. They seem to be prevalent in my legs & feet....but can encompass many other areas.
Thanks in advance..........

Take Care,

Maria

]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2462 Tue, 31 Mar 2009 11:20:06 GMT <![CDATA[ Reminder ]]> http://opca.yuku.com/topic/2436/t/Reminder.html
Carol ]]> feeds@yuku.com (mrsradar) http://opca.yuku.com/topic/2436 Tue, 23 Dec 2008 21:13:52 GMT <![CDATA[ most embarrasing moments ]]> http://opca.yuku.com/topic/2431/t/most-embarrasing-moments.html
Anyway, I had to sit on the floor on a designated spot ~ not a pretty sight. When it was over, I very carefully made sure that everyone around me had already gotten to their feet, and then got up on mine. Kind of. As I was standing up straight, someone must have bumped into me or... ]]> feeds@yuku.com (aunt goose) http://opca.yuku.com/topic/2431 Fri, 12 Dec 2008 20:59:54 GMT <![CDATA[ Nursing home ]]> http://opca.yuku.com/topic/2418/t/Nursing-home.html feeds@yuku.com (Verna) http://opca.yuku.com/topic/2418 Mon, 17 Nov 2008 12:15:44 GMT <![CDATA[ Standing Up ]]> http://opca.yuku.com/topic/2416/t/Standing-Up.html Folks,

How do you feel when you stand up? I find I'm using the balls of my feet & heels to keep me upright, lest I fall over.

Sound familiar?

Thanks in advance........

Take Care,

Maria

]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2416 Thu, 06 Nov 2008 11:18:37 GMT <![CDATA[ 2:45 AM ]]> http://opca.yuku.com/topic/2409/t/2-45-AM.html
Take Care,

Maria ]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2409 Mon, 29 Sep 2008 03:42:37 GMT <![CDATA[ Cure In My Life Time? ]]> http://opca.yuku.com/topic/2408/t/Cure-In-My-Life-Time-.html Folks,

Recently I had this discussion w/ a friend: I wake up every morning feeling like crap & wonder if there will ever be a cure (stem cells aside for the moment)? Since not many physicians know of our malady......can a remedy be in the near future? I don't think so. At least... ]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2408 Sun, 07 Sep 2008 18:40:56 GMT <![CDATA[ Pain ]]> http://opca.yuku.com/topic/2404/t/Pain.html

I guess it is my turn to vent. It has to do with pain. For the last several weeks, I have noticed several things happening to my limbs. First of all, over the last few months, my arms and legs have become weaker. This is to the point that I cannot conduct physical activities that require strength. Example are such activities of picking up a garbage can, lifting garden tools, getting out of a chair, just carrying items.

Now... ]]> feeds@yuku.com (Sailor George) http://opca.yuku.com/topic/2404 Tue, 02 Sep 2008 13:53:53 GMT <![CDATA[ The Cold ]]> http://opca.yuku.com/topic/2397/t/The-Cold.html I'm always cold. Today it's in the upper 70's w/ some breeze & low humidity & I'm getting goose bumps sitting outside. Do you find that you chill faster than you should? I know I'm going through a hormonal thing, as I'm getting those darn hot flashes........but should I also feel cold all the time?

Thanks in advance.........

Take Care,

Maria

]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2397 Tue, 19 Aug 2008 17:09:08 GMT <![CDATA[ Any other ideas? ]]> http://opca.yuku.com/topic/2378/t/Any-other-ideas-.html
Hi,
Truthfully, I really don't know what acceptance of this illness is. Is it that I have it or is it trying to make the best out of life or is it both? All I know is that when I accept it and start feeling better about myself something happens in my life because of this illness that takes me a couple of steps backwards and then I have to get to that acceptance point again. Is that what... ]]> feeds@yuku.com (chas521) http://opca.yuku.com/topic/2378 Sat, 12 Jul 2008 10:03:56 GMT <![CDATA[ My Dad: Eating problems and coughing up phlegm ]]> http://opca.yuku.com/topic/2377/t/My-Dad-Eating-problems-and-coughing-up-phlegm.html feeds@yuku.com (TerriStar) http://opca.yuku.com/topic/2377 Tue, 08 Jul 2008 09:10:27 GMT <![CDATA[ When to go see the doc?? ]]> http://opca.yuku.com/topic/2376/t/When-to-go-see-the-doc-.html My grandmother was diagnosed with Hereditary OPCA after many years of mis-diagnosises. First, she had drop foot and had to where ankle braces; then it was parkensons. It wasn't until she went to the Mayo Clinic after more the 20 years of diagnosis that she was finally told that she had OPCA and after taking a full medical history and family back ground, it was determined that her mother displayed many of the symptoms too. Of course, it was explained to my mother that there was a 50%... ]]> feeds@yuku.com (thrsfair) http://opca.yuku.com/topic/2376 Thu, 03 Jul 2008 14:10:01 GMT <![CDATA[ ggggrrrrrr!@# ]]> http://opca.yuku.com/topic/2374/t/ggggrrrrrr-.html Ok, here we go again! I had decided to go to UCSD (San Diego) for my neurological needs.....they are supposed to be cutting edge, etc. I saw a neuro in Nov. of last year, then again in Feb. They ordered a slew of tests, of course. MRI/brain, EEG, Psych/Neuro consult.
The Psych/Neuro was interesting; it showed marked and severe deficioncys in motor skills, spatial problems, some memory problems, I can't remember everything. And, of course, moderate to severe... ]]> feeds@yuku.com (aunt goose) http://opca.yuku.com/topic/2374 Wed, 25 Jun 2008 20:31:52 GMT <![CDATA[ I find that I also trip on my pride.... ]]> http://opca.yuku.com/topic/2370/t/I-find-that-I-also-trip-on-my-pride-.html I'm 46, as a youngester I played sports.I work now in the entertainment field. I've always been a little clumsy,but laughed it off.
I've givin up all recreational extra's(drinking alcohol,smoking,recreational drugs,even meat), thinking that changing my lifestyle would
reverse my unbalanceness.It has made me better,but also more aware.At work being fast is the norm,I go at my pace,trying to do it right
the first time,but that still... ]]> feeds@yuku.com (Jace0362) http://opca.yuku.com/topic/2370 Sat, 14 Jun 2008 11:11:30 GMT <![CDATA[ Peripheral neuropathy treatment ]]> http://opca.yuku.com/topic/2369/t/Peripheral-neuropathy-treatment.html Hi all

I just came back fom getting some stitches out. Anyway I mentioned my peripheral neuropathy in my feet and legs. The doc said try Vitaman B6. So........I'm trying it and we'll see.

http://www.alyshia.com/OPCA/neuropathy.html

... ]]> feeds@yuku.com (opca) http://opca.yuku.com/topic/2369 Fri, 13 Jun 2008 16:34:24 GMT