Forum Questions & Suggestions http://opca.yuku.com/forums/3 en-us Copyright 2006, Yuku feeds@yuku.com (FeedMaster) webmaster@yuku.com (WebMaster) Sat, 26 Dec 2009 21:01:33 GMT Yuku Feeds 1.0 http://blogs.law.harvard.edu/tech/rss 60 Yuku http://static.yuku.com//feed/bypass/images/button-yuku.png http://opca.yuku.com/forums/3 Yuku - free hosted forums and profiles 88 31 {pics-1.1 "http://www.icra.org/ratingsv02.html" l gen true for "http://yuku.com" r (nz 1 vz 1 lz 1 oz 1 cz 1 ) "http://www.rsac.org/ratingsv01.html" l gen true for "http://yuku.com" r (n 0 s 0 v 0 l 0 )) Search Search Domain q http://yuku.com/search/direct/ <![CDATA[ Active Members ]]> http://opca.yuku.com/topic/2502/t/Active-Members.html
With over 400 members, one would think that there should be many members posting on a regular basis. Even at 10%, this would mean 40 of you could become active. And why not? Even if you do not like the messages being sent, you can participate and tell others what is on your mind. If you have found another site dealing with Ataxia in all its categories, and that you like better than this one, why not express your views.

Yes, I am guilty of not... ]]> feeds@yuku.com (Sailor George) http://opca.yuku.com/topic/2502 Tue, 27 Oct 2009 20:12:39 GMT <![CDATA[ Contact with E-Cousins ]]> http://opca.yuku.com/topic/2497/t/Contact-with-E-Cousins.html
I have just sent an e-mail to the 16 Cousins stating that the only ones with whom I make contact are as follows: Len, James, Debbie, Allie, Dori, and until she dropped out, Jenny. If others are seeing this message, would you please attempt to contact me on the E-Cousins contact list as soon as possible. I will attempt to rectify this problem and if I don't, I will probably drop out and communicate only on this forum. Thanks.

George in Toronto, Canada ]]> feeds@yuku.com (Sailor George) http://opca.yuku.com/topic/2497 Mon, 21 Sep 2009 21:02:25 GMT <![CDATA[ weakend muscles ]]> http://opca.yuku.com/topic/2495/t/weakend-muscles.html ]]> feeds@yuku.com (phatbuns) http://opca.yuku.com/topic/2495 Thu, 10 Sep 2009 21:03:10 GMT <![CDATA[ more questions.... ]]> http://opca.yuku.com/topic/2493/t/more-questions-.html hi! i am patsy and i live in western colorado. winter is approaching and i HATE snow. any coping techniques? please share. ]]> feeds@yuku.com (patsyr) http://opca.yuku.com/topic/2493 Wed, 02 Sep 2009 11:03:00 GMT <![CDATA[ My Book on Parkinson's Plus ]]> http://opca.yuku.com/topic/2486/t/My-Book-on-Parkinson-s-Plus.html I have joined primarily because I have been diagnosed with Parkinson's Plus and my neurologist sees both MSA-C (sporatic OPCA) or MSA (Shy Drager) as my diagnosis. I do have ataxia, swallowing, slurred speech mild cognitive, eye movement problems and trunk movement/head tremors. I progressed quickly and that is another reason my neurologist called it Parkinson's Plus.
http://opca.yuku.com/topic/2486 Fri, 03 Jul 2009 14:11:17 GMT <![CDATA[ Facebook ]]> http://opca.yuku.com/topic/2474/t/Facebook.html
http://www.facebook.com/group.php?gid=8913872193

Check it outt

Gregg
]]> feeds@yuku.com (opca) http://opca.yuku.com/topic/2474 Wed, 29 Apr 2009 17:11:30 GMT <![CDATA[ website problems ]]> http://opca.yuku.com/topic/2472/t/website-problems.html
Just wanted to make everyone aware that we are experiencing some website problems at both alyshia.com/opca and ataxiasupport.org that may be resulting in some error messages when you visit these pages. I am working with the website hosting company to get this problem fixed.

In the meantime, please visit this forum using the direct URL of : http://opca.yuku.com/ - Luckily this forum... ]]> feeds@yuku.com (opca) http://opca.yuku.com/topic/2472 Sat, 25 Apr 2009 22:04:12 GMT <![CDATA[ Problem getting into site ]]> http://opca.yuku.com/topic/2464/t/Problem-getting-into-site.html
This message is a continuation of "Just Wonderin' in The Chit-Chat Cafe. Again, I am having difficulty getting into http://www.ataxiasupport.org after saying the other night that I could. Tonight, I went into http://opca.yuku.com which is now in My Favourites and got in. I just wanted you to know. Why don't you put the latter address into your... ]]> feeds@yuku.com (Sailor George) http://opca.yuku.com/topic/2464 Thu, 02 Apr 2009 20:15:10 GMT <![CDATA[ I have a question... ]]> http://opca.yuku.com/topic/2383/t/I-have-a-question-.html I want to pose a question that has REALLY been on my mind lately. I want your honest feedback and please don't anyone feel the need to add their POSITIVE insight....ok?? (I am talking to me more than anyone~!!!!) With that said...::sweatin::, here goes.

My question has to do with the POSITIVE MENTAL ATTITUDE (PMA, if you will.) I know that we don't grow or thrive when we aren't positive. Being positive is, for the most part, much better for us. The... ]]> feeds@yuku.com (Lindy Exel) http://opca.yuku.com/topic/2383 Fri, 18 Jul 2008 16:58:34 GMT <![CDATA[ Kudos ]]> http://opca.yuku.com/topic/2382/t/Kudos.html
Thanks in advance.

Take Care,

Maria ]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2382 Mon, 14 Jul 2008 03:17:44 GMT <![CDATA[ Photo ]]> http://opca.yuku.com/topic/2352/t/Photo.html
Is there a simple and easy way to post a picture of me like some of you have done?

I went into Yuku and got hopelessly lost. I have given up on several occassions. One time that I tried, it showed all he photos in My Pictures. Was I to delete them all except for the one that I want to put into the form ID? Could not Yuku come up with something easy to follow?

Help.

George in Toronto, Canada ]]> feeds@yuku.com (Sailor George) http://opca.yuku.com/topic/2352 Mon, 12 May 2008 20:01:30 GMT <![CDATA[ Date Changes ]]> http://opca.yuku.com/topic/2349/t/Date-Changes.html Alyshia.......

------------------------------------------The date changes to the last post made in the thread.------------------------------------

From Query Number 3: I am aware of the latter; however, the dates in said thread were changing w/o anyone adding a post. Thank You.

Maria

]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2349 Tue, 06 May 2008 02:07:35 GMT <![CDATA[ Query # 3 ]]> http://opca.yuku.com/topic/2345/t/Query-3.html Folks,

I'm only posting the beginning of an email (for obvious reasons) that I received:

"After an Internet search I came across the OPCA forum and found your name and "profile". Since you provided it, I chose to use your personal email address rather than post to the bulletin board............."

Now the query: Is there a way one can find our personal email address on the Board? I looked... ]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2345 Thu, 24 Apr 2008 09:38:42 GMT <![CDATA[ Query # 2 ]]> http://opca.yuku.com/topic/2343/t/Query-2.html Am I right when I say this Board has been in operation since 2002????

Thanks in advance..........

Take Care,

Maria

]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2343 Mon, 21 Apr 2008 14:07:59 GMT <![CDATA[ What do I expect next? ]]> http://opca.yuku.com/topic/2342/t/What-do-I-expect-next-.html My symptoms began in December 2006 and after several misdiagnoses and surgery I have just been diagnosed with OPCA. My symptoms have been rapidly progressing to where I can barely walk on my own (I've fallen many times), have slurred speach (not too bad) and have problems with my hands. I wonder for how much longer I can live alone. Has anyone else had symptoms that progressed so rapidly from the onset?

]]> feeds@yuku.com (Rona17) http://opca.yuku.com/topic/2342 Sun, 20 Apr 2008 18:18:00 GMT <![CDATA[ Query ]]> http://opca.yuku.com/topic/2341/t/Query.html

I know the Forum uses a 24 hour clock. However, can someone tell me what time zone it's regulated on????????

Thanks in advance............

Maria

]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2341 Thu, 17 Apr 2008 08:48:08 GMT <![CDATA[ Chat Room is back! ]]> http://opca.yuku.com/topic/2336/t/Chat-Room-is-back-.html
Great news folks!!! I have re-added the chat room to our forums! It is the first listed item of the list - It says 'Join Our Chatroom!'
Click on it and try it out.... Hopefully it works for everyone and becomes useful again for you all.

Regards,
Alyshia
]]> feeds@yuku.com (opca) http://opca.yuku.com/topic/2336 Thu, 10 Apr 2008 19:00:42 GMT <![CDATA[ help for my mum ]]> http://opca.yuku.com/topic/2326/t/help-for-my-mum.html up until dec 06 my mum had been told she had M.S, this is what she was diagnosed with in 1980. Her condition is now getting worse and we are struggling to find any help or information about the disease. can anyone help. my sis and i feel totally useless. ]]> feeds@yuku.com (susiewo) http://opca.yuku.com/topic/2326 Mon, 10 Mar 2008 07:52:44 GMT <![CDATA[ my friends illness ]]> http://opca.yuku.com/topic/2325/t/my-friends-illness.html can anybody help and explain his illness he has been diagnosed with a shrinking celebellum

]]> feeds@yuku.com (sollymac) http://opca.yuku.com/topic/2325 Sat, 08 Mar 2008 13:18:40 GMT <![CDATA[ Pictures ]]> http://opca.yuku.com/topic/2321/t/Pictures.html Not quite sure how I did it: but the very small picture on the left is Len & I.

We both hope everyone is having great weekend!

Take Care,

Len & Maria


Ooops.........I guess it's not. That would be me last fall. (?????) ]]> feeds@yuku.com (sportschick12) http://opca.yuku.com/topic/2321 Sun, 24 Feb 2008 10:54:21 GMT