OPCA - SCA - MSA Support Forum

Does Anyone Still Like Him?

feeds@yuku.com (sportschick12) — Mon, 28 Dec 2009 18:48:07 GMT

I know this is not a political forum, but the curiosity in me has to know:

Being that Obama was such a hit a year ago, & his likeability has all but vanished, I was wondering if anyone besides me still likes him?

For those who care: I wish folks would give him a chance..........he was dealt w/ so much & really should be a 2 term president.......however, I'm concerned he will barely make it out the door w/ his...

Christmas Wishes

feeds@yuku.com (Sailor George) — Thu, 24 Dec 2009 20:46:05 GMT

Merry Christmas

to all

active and non-active

members of this forum.

George in Toronto, Canada

Hyperreflexia

feeds@yuku.com (Sailor George) — Tue, 22 Dec 2009 21:25:09 GMT

Hi friends,

I went to the link above called "See the Symptoms Page!" and found that hyperreflexia was not listed. Furthermore, I went to another site which lists symptoms of Spino cerebellar ataxia and it is listed.

These symptoms are Presenting features include gait problems, speech difficulties, clumsiness, and, often, visual blurring and diplopia. Progressive ataxia, hyperreflexia, nystagmus, and dysarthria occur early in the disease. As the disease evolves,...

rigid falling

feeds@yuku.com (iceteezz2008) — Thu, 26 Nov 2009 18:21:41 GMT

ok now it all started with this gait where half hour later after taking meds I would have gait and neurology doctor said I have Ataxia.
went to family doctor to ask for another doctor since this doctor said no cure and need a answer but yes I know there is no cure. now my boyfriend
said yesterday he still does not think I have ataxia. my meds are , since I have one of those falling rigid backwards or leaning 'when standing' up.
On the glass coffee table and I dropped...

A new member

feeds@yuku.com (jenn2) — Wed, 25 Nov 2009 19:07:23 GMT

I have been reading many of your posts and enjoying them immensely. It appears many have been together for a long time. I have just been diagnosed with sporadic ataxia. I am still trying to learn about it. It will be nice to chat with others that can understand how I am feeling and what I am going through. You appear to be a wonderful family and I hope at some point I will be welcomed as a true member. It is something I would like to earn.

my head

feeds@yuku.com (iceteezz2008) — Mon, 16 Nov 2009 14:13:26 GMT

my head

my head hurts I going to the computer and I went ...saw the coffee table first (glass). He needs to switch it to the wood one.
maybe he wouldn't be so wanting or getting everything I do so I will feel afraid, told him off & I will do what I want.
So he is mad,what else?

Heard him talking saying I have...

Could I have OPCA?

feeds@yuku.com (brandij) — Tue, 10 Nov 2009 11:59:37 GMT

I have a question to you all.. I am new to the idea that this could be what is wrong with me.... I have been to doctor after doctor for the last 5 years. My severe symptoms started as a tremor and with that came the slurred speech.... The first flares only lasted a week or so. The first time I went a year before it happened again... then the next time a few months. Last year I went from November until March of this year with no reprieve. The symptoms are: legs jerky, difficult to walk,...

hello question

feeds@yuku.com (iceteezz2008) — Tue, 03 Nov 2009 21:03:01 GMT

I would ask in other post but I thought I would make this one.

About ataxia I was at the computer and got up and of course I had a gait but during it trying to get to small couch from longer one
I felt myself twisting,my boyfriend had to help me even,fell off the couch once but once there I just laid to get my feelings back.
Then after I was able to sit up. That was something, never twisted before. took a antivert a little later.

Has...

Balance and walking

feeds@yuku.com (Sailor George) — Sat, 31 Oct 2009 21:11:50 GMT

Hi folks,

As my symptoms progress, the one symptom that is really adversely affecting me at this time is walking. If I use only my cane, I must hang to someone's arm or use the wall and door frames or anything that is within reach (hopefully stable).

For most walking around the house, I use my rollator. It's use is very helpful. Once I get into my van, I have no trouble driving, thank goodness. I even have clearance from the Ministry of Transportation to drive...

Active Members

feeds@yuku.com (Sailor George) — Tue, 27 Oct 2009 20:12:39 GMT

Hi Fellow Members,

With over 400 members, one would think that there should be many members posting on a regular basis. Even at 10%, this would mean 40 of you could become active. And why not? Even if you do not like the messages being sent, you can participate and tell others what is on your mind. If you have found another site dealing with Ataxia in all its categories, and that you like better than this one, why not express your views.

Yes, I am guilty of not...

High Cholesterol

feeds@yuku.com (masanthony) — Fri, 23 Oct 2009 09:25:55 GMT

This is completely unrelated, but does anyone have this problem, what meds are you taking and what are the side effects? Also, Roberta sorry for your loss.

hello all

feeds@yuku.com (iceteezz2008) — Fri, 16 Oct 2009 23:31:52 GMT

hello all haven't been around lately or when I check in no new posts
today just received a note to mention about an ataxia meeting.
Oct. 24,09 ( and am ok and now just nerves tonight about going.....first time).. Going to Harper Hospital for a speaker
they wanted me to be there a rock n' roll for ataxia but it was too far
...

Lindy & Roberta

feeds@yuku.com (sportschick12) — Thu, 15 Oct 2009 20:29:36 GMT

Gals...........

I wanted to be sure you received my invitation. It's on the thread "neglect of the chat room" in the chit chat cafe.

Take Care,

Maria

Bragging

feeds@yuku.com (Sailor George) — Tue, 06 Oct 2009 20:10:45 GMT

Hi folks,

I just sent Ed an e-mail to his private address, and then thought that the same message could be sent to this site. Here it is:

George in Toronto, Canada

Hi Ed,

Another good day. Cooler but sunny. The grass in the backyard was wet this morning, but after lunch, it was dry enough to mow. After mowing, I decided to hoe the front garden, and then to pull weeds in the backyard. I then came into the house and had a nap.

Upon...

Contact with E-Cousins

feeds@yuku.com (Sailor George) — Mon, 21 Sep 2009 21:02:25 GMT

Hi E-Cousins,

I have just sent an e-mail to the 16 Cousins stating that the only ones with whom I make contact are as follows: Len, James, Debbie, Allie, Dori, and until she dropped out, Jenny. If others are seeing this message, would you please attempt to contact me on the E-Cousins contact list as soon as possible. I will attempt to rectify this problem and if I don't, I will probably drop out and communicate only on this forum. Thanks.

George in Toronto, Canada

Anti-Anxiety Pills

feeds@yuku.com (sportschick12) — Mon, 21 Sep 2009 10:29:24 GMT

Being that after well over 7 months Len still has not found a job & we are looking at possible foreclosure, I tend to go into panic attacks. My neuro gave me Buspirone to calm me down. However the 7.5 mg even cut in half made my vertigo much worse & for the first time was accompanied my nausea.

How have you folks dealt w/ this medication? Understanding that my vestibular system is extremely sensitive to medications I was wondering if trying a 5mg pill & cut that in...

weakend muscles

feeds@yuku.com (phatbuns) — Thu, 10 Sep 2009 21:03:10 GMT

My husband, who was diagnosed in November '09, has deteriorated quite rapidly. It is still questionable as to whether he as OPCA or something else. He refused any more testing. His muscles in his arms and legs have atrophied greatly and he is having an increasingly hard time walking. Is the muscled wasting normal? He actually wears long sleeve shirts, even in the heat, to hide his arms so that no one sees them.

Neglect of the Chat Room

feeds@yuku.com (Sailor George) — Tue, 08 Sep 2009 20:22:45 GMT

Hi folks,

I have come to the conclusion that as Ataxics we find using the Chat Room too much of a challenge. Personally, as my symptoms of SCA6 progress, even the typing of this message is one that is a challenge. I find trying to keep up on a chat line very difficult since my hand co-ordination is poor. At least, when I type in a forum, I can take my time and correct or spell check accordingly.

Don't get me wrong. I am not angry. I have finally come to the...

National Ataxia Foundation Webinar - Sept. 17th

feeds@yuku.com (Bob354) — Fri, 28 Aug 2009 13:36:54 GMT

The Medical Director at the NAF -- Dr. Susan Perlman -- will be speaking on a free webinar on September 17th at 8pm Eastern Time (7:00 PM Central Time; 6:00 PM Mountain Time; 5:00 PM Pacific Time; 1:00 AM United Kingdom/London Time (following day); 2:00 AM South Africa/Johannesburg Time (following day); 10:00 AM Australia/SydneyTime (following day)). Her presentation is entitled, "Ataxia, OPCA & MSA-C Look-A-Likes of PSP, CBD & MSA". To register, copy...